A predictive model of Health Related Quality of life of parents of chronically ill children: The importance of care-dependency of their child and their support system

Janneke Hatzmann, Heleen Maurice-Stam, Hugo S.A. Heymans, Martha A. Grootenhuis

Research output: Contribution to journalArticlepeer-review

62 Citations (Scopus)

Abstract

Background: Parents of chronically ill children are at risk for a lower Health Related Quality of Life (HRQoL). Insight in the dynamics of factors influencing parental HRQoL is necessary for development of interventions. Aim of the present study was to explore the influence of demographic and disease related factors on parental HRQoL, mediated by employment, income, leisure time, holiday and emotional support in a comprehensive model. Methods: In a cross-sectional design, 543 parents of chronically ill children completed questionnaires. A conceptual model of parental HRQoL was developed. Structural equation modeling was performed to explore the relations in the conceptual model, and to test if the model fitted the data. Results: The model fitted the data closely (CHISQ(14) = 11.37, p= 0.66; RMSEA = 0.0, 90%CI [0.00;0.034]. The effect of socio-demographic and medical data on HRQoL was mediated by days on holiday (MCS: β = .21) and emotional support (PCS: β = .14; MCS: β = .28). Also, female gender (β = -.10), age (β = .10), being chronically ill as a parent (β = -.34), and care dependency of the child (β = -.14; β = -.15) were directly related to parental HRQoL. Conclusion: The final model was slightly different from the conceptual model. Main factors explaining parental HRQoL seemed to be emotional support, care dependency, days on holiday and being chronically ill as a parent. Holiday and emotional support mediated the effect of demographic and disease-related factors on HRQoL. Hours of employment, leisure time and household income did not mediate between background characteristics and HRQoL, contrasting the hypotheses.

Original languageEnglish
Article number72
JournalHealth and Quality of Life Outcomes
Volume7
DOIs
Publication statusPublished - 28 Jul 2009
Externally publishedYes

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