Development and implementation of a patient reported outcome intervention (QLIC-ON PROfile) in clinical paediatric oncology practice

Vivian Engelen, Lotte Haverman, Hendrik Koopman, Netteke Schouten-van Meeteren, Esther Meijer-van den Bergh, Jantien Vrijmoet-Wiersma, Elisabeth Maria van Dijk, Bob Last, Symone Detmar, Martha Grootenhuis

Research output: Contribution to journalArticlepeer-review

46 Citations (Scopus)

Abstract

Objective: The use of patient reported outcomes (PRO) in routine clinical practice is becoming increasingly common, but there is limited knowledge about the development and implementation of PRO. The objective of the current paper is to provide a thorough description of the development and implementation of a PRO on health related quality of life (HRQOL) - the QLIC-ON PROfile - in clinical paediatric oncology practice. Methods: The development of the QLIC-ON PROfile is explained by elucidating important choices: the HRQOL instrument, the professional that uses the QLIC-ON PROfile, the optimal form of HRQOL feedback and whether or not a clinically important difference is reported. The description of the implementation of the QLIC-ON PROfile focuses on the education and commitment of the professional that uses the QLIC-ON PROfile. Study design and outcome measures are also elaborated on. Results: Important considerations regarding the development and implementation of PRO interventions are reported. These considerations have also resulted in educational material. Conclusion: Our study adds to current knowledge of PRO research. This paper can be used as a practical guide for researchers and other professionals, who are interested in setting up PRO interventions in any clinical setting.

Original languageEnglish
Pages (from-to)235-244
Number of pages10
JournalPatient Education and Counseling
Volume81
Issue number2
DOIs
Publication statusPublished - Nov 2010
Externally publishedYes

Keywords

  • Clinical practice
  • Development and implementation
  • Health related quality of life (HRQOL)
  • Paediatric oncology
  • Patient reported outcome (PRO)
  • Physician-patient communication

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