Factors Influencing Implementation of the Survivorship Passport: The IT Perspective

Catherine Chronaki, Eliana Charalambous, Giorgio Cangioli, Günter Schreier, Selina Van Den Oever, Helena Van Der Pal, Leontien Kremer, Anne Uyttebroeck, Bart Van Den Bosch, Justas Trinkunas, Jelena Rascon, Ruth Ladenstein, Vanessa Düster, Edit Bardi, Diana Walz, Anna Liesa Filberd, Desiree Grabow, Thorsten Langer, Adela Cañete Nieto, Antonio J.Orduña GalánMarisa Correcher Palau, Giacomo Cavalca, Riccardo Haupt

Research output: Chapter in Book/Report/Conference proceedingConference contributionpeer-review

1 Citation (Scopus)

Abstract

Compared to the general population, childhood cancer survivors represent a vulnerable population as they are at increased risk of developing health problems, known as late effects, resulting in excess morbidity and mortality. The Survivorship Passport aims to capture key health data about the survivors and their treatment, as well as personalized recommendations and a care plan with the aim to support long-term survivorship care. The PanCareSurPass (PCSP) project building on the experience gained in an earlier implementation in Giannina Gaslini Institute, Italy, will implement and rigorously assess an integrated, HL7 FHIR based, implementation of the Survivorship Passport. The six implementation countries, namely Austria, Belgium, Germany, Italy, Lithuania, and Spain, are supported by different national or regional digital health infrastructures and Electronic Medical Record (EMR) systems. Semi structured interviews were carried out to explore potential factors affecting implementation, identify use cases, and coded data that can be semi-automatically transferred from the EMR to SurPass. This paper reflects on findings of these interviews and confirms the need for a multidisciplinary and multi-professional approach towards a sustainable and integrated large-scale implementation of the Survivorship Passport across Europe.

Original languageEnglish
Title of host publicationdHealth 2022 - Proceedings of the 16th Health Informatics Meets Digital Health Conference
EditorsBernhard Pfeifer, Martin Baumgartner
PublisherIOS Press BV
Pages161-168
Number of pages8
ISBN (Electronic)9781643682822
DOIs
Publication statusPublished - 16 May 2022
Event16th Annual Health Informatics Meets Digital Health Conference, dHealth 2022 - Vienna, Austria
Duration: 24 May 202225 May 2022

Publication series

NameStudies in Health Technology and Informatics
Volume293
ISSN (Print)0926-9630
ISSN (Electronic)1879-8365

Conference

Conference16th Annual Health Informatics Meets Digital Health Conference, dHealth 2022
Country/TerritoryAustria
CityVienna
Period24/05/2225/05/22

Keywords

  • Cancer Survivors
  • Childhood Cancer
  • Electronic Medical Records
  • HL7 FHIR
  • International Patient Summary
  • Paediatric Oncology
  • Survivorship Passport

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