TY - JOUR
T1 - Have we made progress in taking care of adolescents and young adults with cancer?
T2 - Results of a European multi-professional survey
AU - Bozovic Spasojevic, Ivana
AU - Ferrari, Andrea
AU - De Munter, Johan
AU - Gamble, Ashley
AU - Konsoulova-Kirova, Assia
AU - Rizvi, Katie
AU - Schneider, Carina
AU - Balsat, Marie
AU - Castleton, Anna
AU - Gofti-Laroche, Leila
AU - Kienesberger, Anita
AU - Timmermann, Beate
AU - Vormoor, Josef
AU - Saloustros, Emmanouil
AU - Stark, Daniel P
PY - 2023
Y1 - 2023
N2 - BACKGROUND: It is well documented that traditional health care models do not meet the specific needs of Adolescents and Young Adults (AYA) cancer patients.METHODS: We explore a map of the development of age-specific AYA cancer care across Europe, from the perspective of healthcare professionals with an interest in AYA care, in order to understand the specific challenges and map progress over time. An on-line survey was developed by international professional cancer organisations.RESULTS: We had 377 respondents from 60 countries. The majority of respondents were physicians 298 (79%), a minority of survey respondents (39, 10.4%) work exclusively with AYA patients, most respondents declared substantial and routine clinical service collaborations to provide care and treatment to AYA with cancer. Policy for the multidisciplinary management of AYA cancer patients commonly appears in Europe now, and was reported by 234 (78.52%) respondents. Specific professional training for AYA cancer care is not uniformly available.CONCLUSION: There is considerable opportunity for many organisations to work together in raising the profile of AYA cancer related issues, in providing education and in encouraging research and collaboration.
AB - BACKGROUND: It is well documented that traditional health care models do not meet the specific needs of Adolescents and Young Adults (AYA) cancer patients.METHODS: We explore a map of the development of age-specific AYA cancer care across Europe, from the perspective of healthcare professionals with an interest in AYA care, in order to understand the specific challenges and map progress over time. An on-line survey was developed by international professional cancer organisations.RESULTS: We had 377 respondents from 60 countries. The majority of respondents were physicians 298 (79%), a minority of survey respondents (39, 10.4%) work exclusively with AYA patients, most respondents declared substantial and routine clinical service collaborations to provide care and treatment to AYA with cancer. Policy for the multidisciplinary management of AYA cancer patients commonly appears in Europe now, and was reported by 234 (78.52%) respondents. Specific professional training for AYA cancer care is not uniformly available.CONCLUSION: There is considerable opportunity for many organisations to work together in raising the profile of AYA cancer related issues, in providing education and in encouraging research and collaboration.
KW - Adolescents and young adults
KW - cancer
KW - survey
KW - Adolescent
KW - Delivery of Health Care
KW - Europe/epidemiology
KW - Health Personnel
KW - Humans
KW - Neoplasms/epidemiology
KW - Surveys and Questionnaires
KW - Young Adult
UR - https://www.mendeley.com/catalogue/6029da1a-0111-3907-97b3-bef7c65cfec3/
U2 - 10.1177/03008916231183477
DO - 10.1177/03008916231183477
M3 - Article
C2 - 37486101
SN - 0300-8916
VL - 109
SP - 546
EP - 554
JO - Tumori
JF - Tumori
IS - 6
ER -