Implementation of electronic patient reported outcomes in pediatric daily clinical practice: The KLIK experience

Lotte Haverman; Hedy A. Van Oers; Perrine F. Limperg; Channa T. Hijmans; Sasja A. Schepers; Simone M. Sint Nicolaas; Chris M. Verhaak; Antonia H.M. Bouts; Karin Fijnvandraat; Marjolein Peters; Marion A. Van Rossum; Johannes B. Van Goudoever; Heleen Maurice-Stam; Martha A. Grootenhuis

doi:10.1037/cpp0000043

Implementation of electronic patient reported outcomes in pediatric daily clinical practice: The KLIK experience

Lotte Haverman, Hedy A. Van Oers, Perrine F. Limperg, Channa T. Hijmans, Sasja A. Schepers, Simone M. Sint Nicolaas, Chris M. Verhaak, Antonia H.M. Bouts, Karin Fijnvandraat, Marjolein Peters, Marion A. Van Rossum, Johannes B. Van Goudoever, Heleen Maurice-Stam, Martha A. Grootenhuis

Research output: Contribution to journal › Article › peer-review

79 Citations (Scopus)

Abstract

The use of patient reported outcomes (PROs) in pediatric practice is effective in increasing discussion about emotional and psychosocial functioning. This finding forms the basis for implementing KLIK: A web-based program using electronic PROs (ePROs). The aim of this article is to describe the KLIK implementation in line with the 8 methodological recommendations composed by the International Society for Quality of Life Research (ISOQOL). (1) Goal of KLIK: To monitor and screen children (aged 0-18) with chronic illnesses over extended periods of time. (2) Children aged 8-18 complete the questionnaires themselves. Parents complete the questionnaires for young children. (3) The basis is a generic HRQOL questionnaire. Disease-specific HRQOL and psychosocial questionnaires are also available. (4) A web-based mode was selected. (5) The questionnaires in KLIK are available prior to a consultation. Pediatricians retrieve the ePROfile from the website (www.hetklikt.nu) and discuss it with the patients. The ePROfile consists of a literal representation of the answers and a graphic presentation. (6) Various tools are used to aid in its interpretation. (7) All members of the multidisciplinary team receive training in how to use the website and how to adequately respond to the patient's ePROfile. (8) Improvements to and evaluation of KLIK are ongoing. Since implementation began, 17 patient groups, 160professionals and 1,450 patients have started using KLIK. The implementation of KLIK appears to be feasible and workable. Many pediatricians have shown an interest in using KLIK and it is therefore being expanded and adapted for different patientgroups and hospitals.

Original language	English
Pages (from-to)	50-67
Number of pages	18
Journal	Clinical Practice in Pediatric Psychology
Volume	2
Issue number	1
DOIs	https://doi.org/10.1037/cpp0000043
Publication status	Published - 2014
Externally published	Yes

Keywords

chronically ill children
health-related quality of life (HRQOL)
patient reported outcomes (PROs)
pediatrics
web-based program

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10.1037/cpp0000043

Cite this

Haverman, L., Van Oers, H. A., Limperg, P. F., Hijmans, C. T., Schepers, S. A., Sint Nicolaas, S. M., Verhaak, C. M., Bouts, A. H. M., Fijnvandraat, K., Peters, M., Van Rossum, M. A., Van Goudoever, J. B., Maurice-Stam, H., & Grootenhuis, M. A. (2014). Implementation of electronic patient reported outcomes in pediatric daily clinical practice: The KLIK experience. Clinical Practice in Pediatric Psychology, 2(1), 50-67. https://doi.org/10.1037/cpp0000043

@article{590e77bb59f84928be538d62655632fe,

title = "Implementation of electronic patient reported outcomes in pediatric daily clinical practice: The KLIK experience",

abstract = "The use of patient reported outcomes (PROs) in pediatric practice is effective in increasing discussion about emotional and psychosocial functioning. This finding forms the basis for implementing KLIK: A web-based program using electronic PROs (ePROs). The aim of this article is to describe the KLIK implementation in line with the 8 methodological recommendations composed by the International Society for Quality of Life Research (ISOQOL). (1) Goal of KLIK: To monitor and screen children (aged 0-18) with chronic illnesses over extended periods of time. (2) Children aged 8-18 complete the questionnaires themselves. Parents complete the questionnaires for young children. (3) The basis is a generic HRQOL questionnaire. Disease-specific HRQOL and psychosocial questionnaires are also available. (4) A web-based mode was selected. (5) The questionnaires in KLIK are available prior to a consultation. Pediatricians retrieve the ePROfile from the website (www.hetklikt.nu) and discuss it with the patients. The ePROfile consists of a literal representation of the answers and a graphic presentation. (6) Various tools are used to aid in its interpretation. (7) All members of the multidisciplinary team receive training in how to use the website and how to adequately respond to the patient's ePROfile. (8) Improvements to and evaluation of KLIK are ongoing. Since implementation began, 17 patient groups, 160professionals and 1,450 patients have started using KLIK. The implementation of KLIK appears to be feasible and workable. Many pediatricians have shown an interest in using KLIK and it is therefore being expanded and adapted for different patientgroups and hospitals.",

keywords = "chronically ill children, health-related quality of life (HRQOL), patient reported outcomes (PROs), pediatrics, web-based program",

author = "Lotte Haverman and {Van Oers}, {Hedy A.} and Limperg, {Perrine F.} and Hijmans, {Channa T.} and Schepers, {Sasja A.} and {Sint Nicolaas}, {Simone M.} and Verhaak, {Chris M.} and Bouts, {Antonia H.M.} and Karin Fijnvandraat and Marjolein Peters and {Van Rossum}, {Marion A.} and {Van Goudoever}, {Johannes B.} and Heleen Maurice-Stam and Grootenhuis, {Martha A.}",

note = "Publisher Copyright: {\textcopyright} 2014 American Psychological Association.",

year = "2014",

doi = "10.1037/cpp0000043",

language = "English",

volume = "2",

pages = "50--67",

journal = "Clinical Practice in Pediatric Psychology",

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publisher = "American Psychological Association",

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Haverman, L, Van Oers, HA, Limperg, PF, Hijmans, CT, Schepers, SA, Sint Nicolaas, SM, Verhaak, CM, Bouts, AHM, Fijnvandraat, K, Peters, M, Van Rossum, MA, Van Goudoever, JB, Maurice-Stam, H & Grootenhuis, MA 2014, 'Implementation of electronic patient reported outcomes in pediatric daily clinical practice: The KLIK experience', Clinical Practice in Pediatric Psychology, vol. 2, no. 1, pp. 50-67. https://doi.org/10.1037/cpp0000043

TY - JOUR

T1 - Implementation of electronic patient reported outcomes in pediatric daily clinical practice

T2 - The KLIK experience

AU - Haverman, Lotte

AU - Van Oers, Hedy A.

AU - Limperg, Perrine F.

AU - Hijmans, Channa T.

AU - Schepers, Sasja A.

AU - Sint Nicolaas, Simone M.

AU - Verhaak, Chris M.

AU - Bouts, Antonia H.M.

AU - Fijnvandraat, Karin

AU - Peters, Marjolein

AU - Van Rossum, Marion A.

AU - Van Goudoever, Johannes B.

AU - Maurice-Stam, Heleen

AU - Grootenhuis, Martha A.

PY - 2014

Y1 - 2014

N2 - The use of patient reported outcomes (PROs) in pediatric practice is effective in increasing discussion about emotional and psychosocial functioning. This finding forms the basis for implementing KLIK: A web-based program using electronic PROs (ePROs). The aim of this article is to describe the KLIK implementation in line with the 8 methodological recommendations composed by the International Society for Quality of Life Research (ISOQOL). (1) Goal of KLIK: To monitor and screen children (aged 0-18) with chronic illnesses over extended periods of time. (2) Children aged 8-18 complete the questionnaires themselves. Parents complete the questionnaires for young children. (3) The basis is a generic HRQOL questionnaire. Disease-specific HRQOL and psychosocial questionnaires are also available. (4) A web-based mode was selected. (5) The questionnaires in KLIK are available prior to a consultation. Pediatricians retrieve the ePROfile from the website (www.hetklikt.nu) and discuss it with the patients. The ePROfile consists of a literal representation of the answers and a graphic presentation. (6) Various tools are used to aid in its interpretation. (7) All members of the multidisciplinary team receive training in how to use the website and how to adequately respond to the patient's ePROfile. (8) Improvements to and evaluation of KLIK are ongoing. Since implementation began, 17 patient groups, 160professionals and 1,450 patients have started using KLIK. The implementation of KLIK appears to be feasible and workable. Many pediatricians have shown an interest in using KLIK and it is therefore being expanded and adapted for different patientgroups and hospitals.

AB - The use of patient reported outcomes (PROs) in pediatric practice is effective in increasing discussion about emotional and psychosocial functioning. This finding forms the basis for implementing KLIK: A web-based program using electronic PROs (ePROs). The aim of this article is to describe the KLIK implementation in line with the 8 methodological recommendations composed by the International Society for Quality of Life Research (ISOQOL). (1) Goal of KLIK: To monitor and screen children (aged 0-18) with chronic illnesses over extended periods of time. (2) Children aged 8-18 complete the questionnaires themselves. Parents complete the questionnaires for young children. (3) The basis is a generic HRQOL questionnaire. Disease-specific HRQOL and psychosocial questionnaires are also available. (4) A web-based mode was selected. (5) The questionnaires in KLIK are available prior to a consultation. Pediatricians retrieve the ePROfile from the website (www.hetklikt.nu) and discuss it with the patients. The ePROfile consists of a literal representation of the answers and a graphic presentation. (6) Various tools are used to aid in its interpretation. (7) All members of the multidisciplinary team receive training in how to use the website and how to adequately respond to the patient's ePROfile. (8) Improvements to and evaluation of KLIK are ongoing. Since implementation began, 17 patient groups, 160professionals and 1,450 patients have started using KLIK. The implementation of KLIK appears to be feasible and workable. Many pediatricians have shown an interest in using KLIK and it is therefore being expanded and adapted for different patientgroups and hospitals.

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KW - health-related quality of life (HRQOL)

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JO - Clinical Practice in Pediatric Psychology

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Implementation of electronic patient reported outcomes in pediatric daily clinical practice: The KLIK experience

Abstract

Keywords

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