TY - JOUR
T1 - Monitoring health-related quality of life in paediatric practice
T2 - Development of an innovative web-based application
AU - Haverman, Lotte
AU - Engelen, Vivian
AU - van Rossum, Marion A.J.
AU - Heymans, Hugo S.A.
AU - Grootenhuis, Martha A.
N1 - Funding Information:
We would like to thank all of the children and parents who participated in the KLIK study. In addition, we wish to thank the paediatricians working in paediatric rheumatology in Amsterdam, J.M. van den Bergh, K. Dolman, T.W. Kuijpers, M.A.J. van Rossum, J.F. Swart and M. van Veenendaal. Furthermore, we thank BioMedia/Artsen voor Kinderen for the web design. This study was supported by Wyeth Pharmaceuticals and AGIS health insurance.
PY - 2011/1/12
Y1 - 2011/1/12
N2 - Background: Health Related Quality of Life (HRQOL) questionnaires are increasingly used in clinical practice. These Patient Reported Outcomes (PROs) are provided to the paediatrician to facilitate communication with patients during a consultation. The aim of the current article is to describe the development and introduction of a new web-based application for the use of PROs in daily paediatric clinical practice.Methods: Currently, the use of PROs in daily clinical practice is very time consuming and often has logistical problems. The use of a web-based programme can overcome these problems and contributes to an improved use of PROs in clinical practice. We therefore developed an easily accessible website (KLIK) for outpatient treatment and a training programme for paediatricians to maximize the effectiveness and the practical use of PROs (KLIK PROfile).Results: The KLIK study was launched in August 2008 to evaluate the use of the KLIK PROfile in daily clinical practice. The KLIK study evaluates whether feedback from HRQOL data could influence patient satisfaction with the consultation, the advice given, the type of referrals and topics discussed. In this multicentre study, a control group (without the use of the KLIK PROfile) is compared to an intervention group (with the use of the KLIK PROfile). A sequential cohort design is chosen to avoid contamination between the study groups.Conclusions: Based on the positive experiences with the use of the KLIK PROfile acquired during the study we conclude that the KLIK PROfile may contribute to systematically monitor and discuss HRQOL issues during consultations. The next steps will be a comprehensive evaluation of the KLIK study data and the implementation of the KLIK PROfile in daily clinical practice in different patient groups.
AB - Background: Health Related Quality of Life (HRQOL) questionnaires are increasingly used in clinical practice. These Patient Reported Outcomes (PROs) are provided to the paediatrician to facilitate communication with patients during a consultation. The aim of the current article is to describe the development and introduction of a new web-based application for the use of PROs in daily paediatric clinical practice.Methods: Currently, the use of PROs in daily clinical practice is very time consuming and often has logistical problems. The use of a web-based programme can overcome these problems and contributes to an improved use of PROs in clinical practice. We therefore developed an easily accessible website (KLIK) for outpatient treatment and a training programme for paediatricians to maximize the effectiveness and the practical use of PROs (KLIK PROfile).Results: The KLIK study was launched in August 2008 to evaluate the use of the KLIK PROfile in daily clinical practice. The KLIK study evaluates whether feedback from HRQOL data could influence patient satisfaction with the consultation, the advice given, the type of referrals and topics discussed. In this multicentre study, a control group (without the use of the KLIK PROfile) is compared to an intervention group (with the use of the KLIK PROfile). A sequential cohort design is chosen to avoid contamination between the study groups.Conclusions: Based on the positive experiences with the use of the KLIK PROfile acquired during the study we conclude that the KLIK PROfile may contribute to systematically monitor and discuss HRQOL issues during consultations. The next steps will be a comprehensive evaluation of the KLIK study data and the implementation of the KLIK PROfile in daily clinical practice in different patient groups.
UR - http://www.scopus.com/inward/record.url?scp=78651233280&partnerID=8YFLogxK
U2 - 10.1186/1471-2431-11-3
DO - 10.1186/1471-2431-11-3
M3 - Article
C2 - 21226913
AN - SCOPUS:78651233280
SN - 1471-2431
VL - 11
JO - BMC Pediatrics
JF - BMC Pediatrics
M1 - 3
ER -