Psychosocial function of Dutch children with cancer and their caregivers during different phases of the COVID-19 pandemic

Marloes van Gorp, Heleen Maurice-Stam, Layla C. Teunissen, Ellen Kilsdonk, Jennifer van Dijk, Mirjam Sulkers, Wim J.E. Tissing, Raphaële R.L. van Litsenburg, Martha A. Grootenhuis

Research output: Contribution to journalArticlepeer-review

3 Citations (Scopus)

Abstract

We compared psychosocial functioning of children with cancer and their caregivers in several phases of the coronavirus disease 2019 (COVID-19) pandemic to before COVID-19. One or more questionnaires on health-related quality of life (HRQoL) or fatigue of children or distress of their caregivers was available from 1644 families. In children with cancer, HRQoL was stable throughout the COVID-19 pandemic. Fatigue was slightly lower and sleep somewhat better during the pandemic than before. Caregiver distress was lower in the first pandemic phase, but increased to pre-COVID-19 levels in later phases, indicating that the length and consequences of the pandemic may be weighing on them.
Original languageEnglish
Article numbere29535
Pages (from-to)e29535
JournalPediatric blood & cancer
Volume69
Issue number4
DOIs
Publication statusPublished - Apr 2022

Keywords

  • COVID-19
  • caregivers
  • childhood cancer
  • fatigue
  • psychological distress
  • quality of life

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