TY - JOUR
T1 - A multi‑country evaluation of healthcare professionals’ experiences with the PanCareFollowUp training package to implement person-centred care in childhood cancer survivorship care
T2 - A PanCareFollowUp study
AU - on behalf of PanCareFollowUp Consortium
AU - Loonen, Jacqueline J.
AU - Bouwman, Eline
AU - Penson, Adriaan
AU - Follin, Cecilia
AU - Uyttebroeck, Anne
AU - Breij, Dionne
AU - Kepakova, Katerina
AU - Prikken, Sofie
AU - Hjorth, Lars
AU - Winther, Jeanette F.
AU - van der Pal, Helena J.H.
AU - Schneider, Carina
AU - Kienesberger, Anita
AU - Gsell, Hannah
AU - Michel, Gisela
AU - Pluijm, Saskia M.F.
AU - Skinner, Roderick
AU - Kremer, Leontien C.M.
AU - Muraca, Monica
AU - Kepak, Tomas
AU - Hermens, Rosella P.M.G.
N1 - Publisher Copyright:
© The Author(s) 2026.
PY - 2026/7
Y1 - 2026/7
N2 - Purpose: Survivors of childhood, adolescent, and young adult (CAYA) cancer face lifelong risks of treatment-related late effects, emphasizing the need for innovative, person-centred survivorship care. The PanCareFollowUp (PCFU) Care intervention, based on person-centred care (PCC), prioritizes survivors' values and needs. This paper describes the evaluation of experiences of healthcare professionals’ (HCPs) and supporting staff’s experiences with the training package that was developed for implementation of PCC in the PCFU Care. Methods: To support PCC delivery, a training package, including a training presentation with voice-over and a workshop, was developed. Healthcare professionals (HCPs) and supporting staff from four European survivorship clinics evaluated the training package through questionnaires measuring readiness to apply PCC, knowledge, confidence, perceived utility, and tool-related experiences. Results: Eighteen HCPs evaluated the training presentation. Readiness to apply PCC increased from 68% pre-training to 89% post-training, while confidence declined from 78% to 68%. Most participants reported improved knowledge, with 94% indicating at least some increase. Frameworks such as Ekman’s pillars, the seven steps for a PCC consultation, and shared decision-making questions were rated highly useful. Twenty-eight HCPs evaluated the workshop; 82% found it useful and 82% reported an overall favourable impression. Participants valued open discussion, multidisciplinary perspectives, and survivor involvement. The workshop’s short duration and more broadly, limited time, staff shortages, and digital infrastructure were identified as barriers to PCC implementation. Conclusion: This multi-country evaluation shows that even brief PCC training can enhance HCPs’ readiness to deliver person-centred survivorship care. The findings highlight both the potential of concise educational interventions and the importance of delivery format and organizational context for the sustainable implementation of PCC across survivorship care settings.
AB - Purpose: Survivors of childhood, adolescent, and young adult (CAYA) cancer face lifelong risks of treatment-related late effects, emphasizing the need for innovative, person-centred survivorship care. The PanCareFollowUp (PCFU) Care intervention, based on person-centred care (PCC), prioritizes survivors' values and needs. This paper describes the evaluation of experiences of healthcare professionals’ (HCPs) and supporting staff’s experiences with the training package that was developed for implementation of PCC in the PCFU Care. Methods: To support PCC delivery, a training package, including a training presentation with voice-over and a workshop, was developed. Healthcare professionals (HCPs) and supporting staff from four European survivorship clinics evaluated the training package through questionnaires measuring readiness to apply PCC, knowledge, confidence, perceived utility, and tool-related experiences. Results: Eighteen HCPs evaluated the training presentation. Readiness to apply PCC increased from 68% pre-training to 89% post-training, while confidence declined from 78% to 68%. Most participants reported improved knowledge, with 94% indicating at least some increase. Frameworks such as Ekman’s pillars, the seven steps for a PCC consultation, and shared decision-making questions were rated highly useful. Twenty-eight HCPs evaluated the workshop; 82% found it useful and 82% reported an overall favourable impression. Participants valued open discussion, multidisciplinary perspectives, and survivor involvement. The workshop’s short duration and more broadly, limited time, staff shortages, and digital infrastructure were identified as barriers to PCC implementation. Conclusion: This multi-country evaluation shows that even brief PCC training can enhance HCPs’ readiness to deliver person-centred survivorship care. The findings highlight both the potential of concise educational interventions and the importance of delivery format and organizational context for the sustainable implementation of PCC across survivorship care settings.
KW - Cancer Survivorship Care
KW - Implementation
KW - PanCareFollowUp
KW - Person-Centred Care
UR - https://www.scopus.com/pages/publications/105043554081
U2 - 10.1007/s00520-026-10930-5
DO - 10.1007/s00520-026-10930-5
M3 - Article
AN - SCOPUS:105043554081
SN - 0941-4355
VL - 34
JO - Supportive Care in Cancer
JF - Supportive Care in Cancer
IS - 7
M1 - 703
ER -