TY - JOUR
T1 - Defining chronic diseases and health conditions in childhood (0-18 years of age)
T2 - National consensus in the Netherlands
AU - Mokkink, Lidwine B.
AU - Van Der Lee, Johanna H.
AU - Grootenhuis, Martha A.
AU - Offringa, Martin
AU - Heymans, Hugo S.A.
N1 - Funding Information:
Acknowledgement This study was supported by the Dutch Ministry of Social Affairs and Employment. We thank all panel members for their contributions, and Prof. Dr. N.K. Klazinga for his contribution as chairman of the consensus meeting.
PY - 2008/12
Y1 - 2008/12
N2 - A national consensus procedure was organised to define chronic diseases and health conditions in childhood. Based on (1) a systematic literature search on the definitions of chronic conditions in childhood and (2) a theoretical framework of determinants and indicators of health conditions, a definition of chronic conditions in childhood was proposed. This proposal was subsequently modified according to the comments received from 21 Dutch experts (clinicians, researchers and representatives of patient organisations) in two written consultation rounds and one national meeting, until consensus was reached. Consensus was attained on a definition consisting of four criteria: a disease or condition is considered to be a chronic condition in childhood if: (1) it occurs in children aged 0 up to 18 years; (2) the diagnosis is based on medical scientific knowledge and can be established using reproducible and valid methods or instruments according to professional standards; (3) it is not (yet) curable or, for mental health conditions, if it is highly resistant to treatment and (4) it has been present for longer than three months or it will, very probably, last longer than three months, or it has occurred three times or more during the past year and will probably reoccur. This definition was operationalised using the ICD-10 classification of the World Health Organisation (WHO; International Statistical Classification of Diseases and Related Health Problems [ICD], 10th revision, Geneva, Switzerland, 1992). By this systematic and thorough procedure, national consensus on a comprehensive definition of chronic conditions in children which can be used for epidemiological research was reached.
AB - A national consensus procedure was organised to define chronic diseases and health conditions in childhood. Based on (1) a systematic literature search on the definitions of chronic conditions in childhood and (2) a theoretical framework of determinants and indicators of health conditions, a definition of chronic conditions in childhood was proposed. This proposal was subsequently modified according to the comments received from 21 Dutch experts (clinicians, researchers and representatives of patient organisations) in two written consultation rounds and one national meeting, until consensus was reached. Consensus was attained on a definition consisting of four criteria: a disease or condition is considered to be a chronic condition in childhood if: (1) it occurs in children aged 0 up to 18 years; (2) the diagnosis is based on medical scientific knowledge and can be established using reproducible and valid methods or instruments according to professional standards; (3) it is not (yet) curable or, for mental health conditions, if it is highly resistant to treatment and (4) it has been present for longer than three months or it will, very probably, last longer than three months, or it has occurred three times or more during the past year and will probably reoccur. This definition was operationalised using the ICD-10 classification of the World Health Organisation (WHO; International Statistical Classification of Diseases and Related Health Problems [ICD], 10th revision, Geneva, Switzerland, 1992). By this systematic and thorough procedure, national consensus on a comprehensive definition of chronic conditions in children which can be used for epidemiological research was reached.
KW - Adolescent
KW - Child
KW - Chronic disease
KW - Chronic illness
KW - Consensus
UR - http://www.scopus.com/inward/record.url?scp=54249092970&partnerID=8YFLogxK
U2 - 10.1007/s00431-008-0697-y
DO - 10.1007/s00431-008-0697-y
M3 - Article
C2 - 18340463
AN - SCOPUS:54249092970
SN - 0340-6199
VL - 167
SP - 1441
EP - 1447
JO - European Journal of Pediatrics
JF - European Journal of Pediatrics
IS - 12
ER -