TY - JOUR
T1 - Development and implementation of a patient reported outcome intervention (QLIC-ON PROfile) in clinical paediatric oncology practice
AU - Engelen, Vivian
AU - Haverman, Lotte
AU - Koopman, Hendrik
AU - Schouten-van Meeteren, Netteke
AU - Meijer-van den Bergh, Esther
AU - Vrijmoet-Wiersma, Jantien
AU - van Dijk, Elisabeth Maria
AU - Last, Bob
AU - Detmar, Symone
AU - Grootenhuis, Martha
N1 - Funding Information:
We thank Robert Segaar for developing the stand alone computer version of the PedsQL and TAPQOL, and the QLIC-ON PROfile. Our gratitude also goes out to, Frits Schiphorst from Zonder Boter, who was responsible for designing the QLIC-ON Pocket Card. In addition, we thank the Dutch Cancer Society for funding this research.
PY - 2010/11
Y1 - 2010/11
N2 - Objective: The use of patient reported outcomes (PRO) in routine clinical practice is becoming increasingly common, but there is limited knowledge about the development and implementation of PRO. The objective of the current paper is to provide a thorough description of the development and implementation of a PRO on health related quality of life (HRQOL) - the QLIC-ON PROfile - in clinical paediatric oncology practice. Methods: The development of the QLIC-ON PROfile is explained by elucidating important choices: the HRQOL instrument, the professional that uses the QLIC-ON PROfile, the optimal form of HRQOL feedback and whether or not a clinically important difference is reported. The description of the implementation of the QLIC-ON PROfile focuses on the education and commitment of the professional that uses the QLIC-ON PROfile. Study design and outcome measures are also elaborated on. Results: Important considerations regarding the development and implementation of PRO interventions are reported. These considerations have also resulted in educational material. Conclusion: Our study adds to current knowledge of PRO research. This paper can be used as a practical guide for researchers and other professionals, who are interested in setting up PRO interventions in any clinical setting.
AB - Objective: The use of patient reported outcomes (PRO) in routine clinical practice is becoming increasingly common, but there is limited knowledge about the development and implementation of PRO. The objective of the current paper is to provide a thorough description of the development and implementation of a PRO on health related quality of life (HRQOL) - the QLIC-ON PROfile - in clinical paediatric oncology practice. Methods: The development of the QLIC-ON PROfile is explained by elucidating important choices: the HRQOL instrument, the professional that uses the QLIC-ON PROfile, the optimal form of HRQOL feedback and whether or not a clinically important difference is reported. The description of the implementation of the QLIC-ON PROfile focuses on the education and commitment of the professional that uses the QLIC-ON PROfile. Study design and outcome measures are also elaborated on. Results: Important considerations regarding the development and implementation of PRO interventions are reported. These considerations have also resulted in educational material. Conclusion: Our study adds to current knowledge of PRO research. This paper can be used as a practical guide for researchers and other professionals, who are interested in setting up PRO interventions in any clinical setting.
KW - Clinical practice
KW - Development and implementation
KW - Health related quality of life (HRQOL)
KW - Paediatric oncology
KW - Patient reported outcome (PRO)
KW - Physician-patient communication
UR - http://www.scopus.com/inward/record.url?scp=77954600416&partnerID=8YFLogxK
U2 - 10.1016/j.pec.2010.02.003
DO - 10.1016/j.pec.2010.02.003
M3 - Article
C2 - 20189747
AN - SCOPUS:77954600416
SN - 0738-3991
VL - 81
SP - 235
EP - 244
JO - Patient Education and Counseling
JF - Patient Education and Counseling
IS - 2
ER -