Disorders of sex development: summaries of long-term outcome studies

Justine Schober, Anna Nordenström, Piet Hoebeke, Peter Lee, Christopher Houk, Leendert Looijenga, Gianantonio Manzoni, William Reiner, Christopher Woodhouse

Onderzoeksoutput: Bijdrage aan tijdschriftArtikel recenserenpeer review

Samenvatting

Existing outcomes for DSD individuals are inadequate because reports are based upon information collected retrospectively. This paper is presented to review existing data emphasizing information needed to lead to better future care, is based on presentations and discussions at a multi-disciplinary meeting on DSD held in Annecy in 2012, and is not intended to define the present status of management of each of the various DSD diagnoses. Rather it is intended to provide information needed to do studies regarding outcome data from the treatment of children with DSD by providing a summary of recommendations of 'patient-centered' topics that need investigation. The hope is that by being concerned with what is not known, new protocols will be developed for improving both early management and transition to adult life.

Originele taal-2Engels
Pagina's (van-tot)616-23
Aantal pagina's8
TijdschriftJournal of pediatric urology
Volume8
Nummer van het tijdschrift6
DOI's
StatusGepubliceerd - dec. 2012
Extern gepubliceerdJa

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