TY - JOUR
T1 - FACE-Q craniofacial module
T2 - Part 2 Psychometric properties of newly developed scales for children and young adults with facial conditions
AU - Klassen, Anne F.
AU - Rae, Charlene
AU - Riff, Wong
AU - Denadai, Rafael
AU - Murray, Dylan J.
AU - Bracken, Shirley
AU - Courtemanche, Douglas J.
AU - Bulstrode, Neil
AU - O'Hara, Justine
AU - Butler, Daniel
AU - Goldstein, Jesse
AU - Tassi, Ali
AU - Hol, Marinka LF
AU - Johnson, David
AU - Ganske, Ingrid M.
AU - Kölby, Lars
AU - Benitez, Susana
AU - Breuning, Eleonore E.
AU - Malic, Claudia C.
AU - Allen, Gregory C.
AU - Pusic, Andrea L.
AU - Cano, Stefan
N1 - Publisher Copyright:
© 2021 British Association of Plastic, Reconstructive and Aesthetic Surgeons
PY - 2021/9
Y1 - 2021/9
N2 - Background: The FACE-Q Craniofacial Module is a patient-reported outcome measure designed for patients aged 8 to 29 years with conditions associated with a facial difference. In part 1, we describe the psychometric findings for the original CLEFT-Q scales tested in patients with cleft and noncleft facial conditions. The aim of this study was to examine psychometric performance of new FACE-Q Craniofacial Module scales. Methods: Data were collected between December 2016 and December 2019 from patients aged 8 to 29 years with conditions associated with a visible or functional facial difference. Rasch measurement theory (RMT) analysis was used to examine psychometric properties of each scale. Scores were transformed from 0 (worst) to 100 (best) for tests of construct validity. Results: 1495 participants were recruited with a broad range of conditions (e.g., birthmarks, facial paralysis, craniosynostosis, craniofacial microsomia, etc.) RMT analysis resulted in the refinement of 7 appearance scales (Birthmark, Cheeks, Chin, Eyes, Forehead, Head Shape, Smile), two function scales (Breathing, Facial), and an Appearance Distress scale. Person separation index and Cronbach alpha values met criteria. Three checklists were also formed (Eye Function, and Eye and Face Adverse Effects). Significantly lower scores on eight of nine scales were reported by participants whose appearance or functional difference was rated as a major rather than minor or no difference. Higher appearance distress correlated with lower appearance scale scores. Conclusion: The FACE-Q Craniofacial Module scales can be used to collect and compare patient reported outcomes data in children and young adults with a facial condition.
AB - Background: The FACE-Q Craniofacial Module is a patient-reported outcome measure designed for patients aged 8 to 29 years with conditions associated with a facial difference. In part 1, we describe the psychometric findings for the original CLEFT-Q scales tested in patients with cleft and noncleft facial conditions. The aim of this study was to examine psychometric performance of new FACE-Q Craniofacial Module scales. Methods: Data were collected between December 2016 and December 2019 from patients aged 8 to 29 years with conditions associated with a visible or functional facial difference. Rasch measurement theory (RMT) analysis was used to examine psychometric properties of each scale. Scores were transformed from 0 (worst) to 100 (best) for tests of construct validity. Results: 1495 participants were recruited with a broad range of conditions (e.g., birthmarks, facial paralysis, craniosynostosis, craniofacial microsomia, etc.) RMT analysis resulted in the refinement of 7 appearance scales (Birthmark, Cheeks, Chin, Eyes, Forehead, Head Shape, Smile), two function scales (Breathing, Facial), and an Appearance Distress scale. Person separation index and Cronbach alpha values met criteria. Three checklists were also formed (Eye Function, and Eye and Face Adverse Effects). Significantly lower scores on eight of nine scales were reported by participants whose appearance or functional difference was rated as a major rather than minor or no difference. Higher appearance distress correlated with lower appearance scale scores. Conclusion: The FACE-Q Craniofacial Module scales can be used to collect and compare patient reported outcomes data in children and young adults with a facial condition.
KW - Appearance
KW - Birthmark
KW - CLEFT-Q
KW - Craniofacial
KW - FACE-Q
KW - Patient reported outcome measure
KW - PROM
KW - Psychometrics
KW - Quality of Life
UR - http://www.scopus.com/inward/record.url?scp=85108506824&partnerID=8YFLogxK
U2 - 10.1016/j.bjps.2021.03.009
DO - 10.1016/j.bjps.2021.03.009
M3 - Article
C2 - 34172403
AN - SCOPUS:85108506824
SN - 1748-6815
VL - 74
SP - 2330
EP - 2340
JO - Journal of Plastic, Reconstructive and Aesthetic Surgery
JF - Journal of Plastic, Reconstructive and Aesthetic Surgery
IS - 9
ER -