Genome sequencing in pediatrics: Ethical issues

Candice Cornelis, Roel H.P. Wouters

Onderzoeksoutput: Hoofdstuk in Boek/Rapport/CongresprocedureHoofdstukpeer review

3 Citaten (Scopus)


The emergence of genomics, both in clinical care and research, raises a number of ethical questions. One of the key challenges is how to handle unsolicited or secondary findings. While the responsible management of unsolicited findings (UFs) remains a controversial and highly debated topic in adults, this challenge becomes increasingly complex in the case of children. In this chapter, potential conflicts between protecting the values of parents’ and children’s autonomy and their wellbeing are described and evaluated. It is argued that on a reasonable conception of how these values should be promoted, they may not necessarily be in conflict with one another. This insight is used to outline a set of proposals for addressing pediatric UFs in clinical practice.

Originele taal-2Engels
TitelClinical Genome Sequencing
SubtitelPsychological Considerations
Aantal pagina's14
ISBN van elektronische versie9780128133354
ISBN van geprinte versie9780128133361
StatusGepubliceerd - 1 jan. 2019
Extern gepubliceerdJa


Duik in de onderzoeksthema's van 'Genome sequencing in pediatrics: Ethical issues'. Samen vormen ze een unieke vingerafdruk.

Citeer dit