TY - JOUR
T1 - The European multistakeholder PanCareFollowUp project
T2 - novel, person-centred survivorship care to improve care quality, effectiveness, cost-effectiveness and accessibility for cancer survivors and caregivers
AU - PanCareFollowUp Consortium
AU - van Kalsbeek, Rebecca J.
AU - van der Pal, Helena J.H.
AU - Hjorth, Lars
AU - Winther, Jeanette F.
AU - Michel, Gisela
AU - Haupt, Riccardo
AU - Uyttebroeck, Anne
AU - O'Brien, Kylie
AU - Kepakova, Katerina
AU - Follin, Cecilia
AU - Muraca, Monica
AU - Kepak, Tomas
AU - Araujo-Soares, Vera
AU - Bardi, Edit
AU - Blondeel, Anne
AU - Bouwman, Eline
AU - Brown, Morven C.
AU - Frederiksen, Line E.
AU - Essiaf, Samira
AU - Hermens, Rosella P.M.G.
AU - Kienesberger, Anita
AU - Korevaar, Joke C.
AU - Mader, Luzius
AU - Mangelschots, Marlies
AU - Mulder, Renée L.
AU - van den Oever, Selina
AU - Rijken, Mieke
AU - Roser, Katharina
AU - Skinner, Rod
AU - Pluijm, Saskia M.F.
AU - Loonen, Jacqueline J.
AU - Kremer, Leontien C.M.
AU - Van den Oever, Selina R.
AU - Eriksson, Lill
AU - Relander, Thomas
AU - Engellau, Jacob
AU - Fjordén, Karin
AU - Bogefors, Karolina
AU - Holmqvist, Anna Säll fors
AU - Nicolas, Brigitte
AU - Bagnasco, Francesca
AU - Benvenuto, Marina
AU - Aulicino, Anna
AU - Laudisi, Luca
AU - Hrstkova, Hana
AU - Bajciova, Viera
AU - Holikova, Marta
AU - Strublova, Lucie
AU - Renard, Marleen
AU - Jacobs, Sandra
N1 - Publisher Copyright:
© 2021 Elsevier Ltd
PY - 2021/8
Y1 - 2021/8
N2 - Background: The majority of childhood cancer survivors are at risk of treatment-related adverse health outcomes. Survivorship care to mitigate these late effects is endorsed, but it is not available for many adult survivors of childhood cancer in Europe. The PanCareFollowUp project was initiated to improve their health and quality of life (QoL) by facilitating person-centred survivorship care. Methods: The PanCareFollowUp consortium was established in 2018, consisting of 14 project partners from ten European countries, including survivor representatives. The consortium will develop two PanCareFollowUp Interventions, including a person-centred guideline–based model of care (Care Intervention) and eHealth lifestyle coaching (Lifestyle Intervention). Their development will be informed by several qualitative studies and systematic reviews on barriers and facilitators for implementation and needs and preferences of healthcare providers (HCPs) and survivors. Implementation of the PanCareFollowUp Care Intervention as usual care will be evaluated prospectively among 800 survivors from Belgium, Czech Republic, Italy and Sweden for survivor empowerment, detection of adverse health conditions, satisfaction among survivors and HCPs, cost-effectiveness and feasibility. The feasibility of the PanCareFollowUp Lifestyle Intervention will be evaluated in the Netherlands among 60 survivors. Results: Replication manuals, allowing for replication of the PanCareFollowUp Care and Lifestyle Intervention, will be published and made freely available after the project. Moreover, results of the corresponding studies are expected within the next five years. Conclusions: The PanCareFollowUp project is a novel European collaboration aiming to improve the health and QoL of all survivors across Europe by developing and prospectively evaluating the person-centred PanCareFollowUp Care and Lifestyle Interventions.
AB - Background: The majority of childhood cancer survivors are at risk of treatment-related adverse health outcomes. Survivorship care to mitigate these late effects is endorsed, but it is not available for many adult survivors of childhood cancer in Europe. The PanCareFollowUp project was initiated to improve their health and quality of life (QoL) by facilitating person-centred survivorship care. Methods: The PanCareFollowUp consortium was established in 2018, consisting of 14 project partners from ten European countries, including survivor representatives. The consortium will develop two PanCareFollowUp Interventions, including a person-centred guideline–based model of care (Care Intervention) and eHealth lifestyle coaching (Lifestyle Intervention). Their development will be informed by several qualitative studies and systematic reviews on barriers and facilitators for implementation and needs and preferences of healthcare providers (HCPs) and survivors. Implementation of the PanCareFollowUp Care Intervention as usual care will be evaluated prospectively among 800 survivors from Belgium, Czech Republic, Italy and Sweden for survivor empowerment, detection of adverse health conditions, satisfaction among survivors and HCPs, cost-effectiveness and feasibility. The feasibility of the PanCareFollowUp Lifestyle Intervention will be evaluated in the Netherlands among 60 survivors. Results: Replication manuals, allowing for replication of the PanCareFollowUp Care and Lifestyle Intervention, will be published and made freely available after the project. Moreover, results of the corresponding studies are expected within the next five years. Conclusions: The PanCareFollowUp project is a novel European collaboration aiming to improve the health and QoL of all survivors across Europe by developing and prospectively evaluating the person-centred PanCareFollowUp Care and Lifestyle Interventions.
KW - Aftercare
KW - Cancer survivors
KW - Decision-making
KW - Empowerment
KW - Neoplasms
KW - Patient-centred care
KW - Practice guideline
KW - Quality of life
KW - Shared
KW - Survivorship
UR - http://www.scopus.com/inward/record.url?scp=85110461857&partnerID=8YFLogxK
U2 - 10.1016/j.ejca.2021.05.030
DO - 10.1016/j.ejca.2021.05.030
M3 - Article
C2 - 34153717
AN - SCOPUS:85110461857
SN - 0959-8049
VL - 153
SP - 74
EP - 85
JO - European Journal of Cancer
JF - European Journal of Cancer
ER -