TY - JOUR
T1 - Unmet information needs about the delivery of rheumatology health care services
T2 - A survey among patients with rheumatoid arthritis
AU - Meesters, Jorit
AU - de Boer, Ingeborg
AU - van den Berg, Marleen
AU - Fiocco, Marta
AU - Vliet Vlieland, Thea
N1 - Funding Information:
We thank Marjan Bertens for participating in this project. This project was financially supported by a ZonMw Research Grant (Project “Reumanet Leiden”, project number: 32060125, project team leader: T.P.M. Vliet Vlieland).
PY - 2011/11
Y1 - 2011/11
N2 - Objective: To measure patient-perceived knowledge and information need regarding regional health care services and their determinants among 400 patients with rheumatoid arthritis (RA) and to identify the preferred method of information provision. Methods: Postal survey on knowledge and information need (content and accessibility) of 18 regional health care services and preferences for the mode of delivery of information. Logistic regression analyses determined which factors were associated with insufficient knowledge and information need. Results: Two-hundred and thirty-seven (94%) patients reported insufficient knowledge about the contents and 235 (94%) about the accessibility of at least one health care services, whereas 172 patients (69%) reported an information need about the content and 154 (61%) on the accessibility. Age was significantly associated with knowledge whereas both age and physical functioning were significantly associated with information need. Seventy-nine percent of the patients mentioned written information, 21% the Internet and 12% personal contact with a professional as a preferred method of information delivery. Conclusion: Many RA patients reported a lack of knowledge or information need concerning the contents and accessibility of regional health care services. Practice implications: Active strategies to provide practical information about health care services are needed for RA patients.
AB - Objective: To measure patient-perceived knowledge and information need regarding regional health care services and their determinants among 400 patients with rheumatoid arthritis (RA) and to identify the preferred method of information provision. Methods: Postal survey on knowledge and information need (content and accessibility) of 18 regional health care services and preferences for the mode of delivery of information. Logistic regression analyses determined which factors were associated with insufficient knowledge and information need. Results: Two-hundred and thirty-seven (94%) patients reported insufficient knowledge about the contents and 235 (94%) about the accessibility of at least one health care services, whereas 172 patients (69%) reported an information need about the content and 154 (61%) on the accessibility. Age was significantly associated with knowledge whereas both age and physical functioning were significantly associated with information need. Seventy-nine percent of the patients mentioned written information, 21% the Internet and 12% personal contact with a professional as a preferred method of information delivery. Conclusion: Many RA patients reported a lack of knowledge or information need concerning the contents and accessibility of regional health care services. Practice implications: Active strategies to provide practical information about health care services are needed for RA patients.
KW - Clinical health promotion
KW - Consumer health information
KW - Health care services
KW - Health services accessibility
KW - Rheumatoid arthritis
KW - Unmet needs
UR - http://www.scopus.com/inward/record.url?scp=80053935175&partnerID=8YFLogxK
U2 - 10.1016/j.pec.2010.10.004
DO - 10.1016/j.pec.2010.10.004
M3 - Article
C2 - 21051173
AN - SCOPUS:80053935175
SN - 0738-3991
VL - 85
SP - 299
EP - 303
JO - Patient Education and Counseling
JF - Patient Education and Counseling
IS - 2
ER -